Thursday, July 7, 2011

From Wendy Saunders...

For those who are curious about some very recent strides in research may I suggest a blog of a very close and trusted friend of mine. Her daughter participated in Dr. Capone and Kennedy Krieger's research trial. The purpose of this trial was to determine if the drug (Rigvastigmine) used in Alzheimer patients will be safe and beneficial for individuals with DS.... especially since they have linked Alzheimers patients with a 21st chromosome. I think you will find that Beth breaks down some of the more technical hard to read information into something easier to read along with some fun antics of her daughter, some endearing qualities as well as some not so pretty truths... (okay so I am partial to Hannah she is a house guest from time to time) However for those who do like the more technical information Beth does link to the original research and information. I have posted the link below which is the end of their experience of the research but if you are intrigued and interested Beth has put a link at the end of the post that will take back so you can read their experiences from the Beginning. Hope everyone has a wonderful day with all things good, calm and smooth coming your way. ;-)

Hannah's Shenanigans: Research Study 4th Visit
After much harassment encouragement, I entered the blogosphere to document the delightful (or otherwise) and unexpected moments of my younger daughter's life. Hannah was born in 1998. She surprised us with her extra chromosome, and continues to surprise us with her humor, intellect and obstinacy.

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